Purpose and background of the Foundation


The CAA Foundation is the only foundation worldwide that focuses on raising funds for research into the disease CAA. Since the disease is still unknown to the general public, the Foundation focuses not only on raising funds, but also on outreach activities to bring this common disease to national attention.


Jan Fens, a carrier of the hereditary gene, discovered that there was no medicine for CAA. He and the other carriers of the hereditary variant could be the key to the solution. He decided to establish the CAA Foundation. Research into the hereditary group had been dormant for years and there is not enough money to come closer to a solution. There was no driving force to put CAA on the map and to raise funds for research. Therefore, Jan uses the Foundation to focus on increasing awareness of this common disease and on generating donations. He hopes that the solution will be found quickly. Not only so that there is a medicine if his children also suffer from the hereditary burden, but also for all hereditary generations after him and all the Dutch who get CAA.